Hello There
I’m Donna,
I am a mother and a wife, a daughter, a sister and a friend.
I was born with a complex congenital cardiac condition – tricuspid atresia, pulmonary atresia, TGA and ASD. This means I have a right sided single ventricle condition. I have had open heart surgery on 2 occasions, and several scary moments…. but I’m still here… at 56 I am grateful for that fact.
My passions are reading and writing – I have 2 blogs: Life and Other Stories and Finger to Keyboard. You can find me on Instagram and I also write for Disability Talk.
This Substack was previously titled ‘A Desk of my Own’, but over this last year I have come to realise that I can write anywhere, regularly picking up my laptop and notebook to find a space to record the happenings in our life. I have also come to realise that it is these happenings; the fun, the adventure, the sadness and the joy that are what make up the important moments of our lives
My son, Nathan, and my daughter, Cerys, both have Cerebral Palsy and are full time wheelchair users. Nathan has a degree in politics and sociology and is currently working with local colleges and universities to train social workers. Cerys is currently at college and is creative, running her own little business selling cards to friends and family. We are incredibly lucky to have a team of PAs and Carers to assist them to live well in the way they want.
This creates a very busy household, espcially if my husband is also home. At times there can be the 4 of us, plus a PA for Nathan, and 2 carers for Cerys.
Life and Other Stories will, hopefully, show what is important to us and the moments that capture that.
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